An AUsome Life

In pursuit of the
good New England life.

Family days out, classic clothes, beautiful useful things, and life with profound autism. Preferably somewhere near the water — and with the practical details figured out before we leave.

A family visit at an aquarium.

The AUsome edit

The things we keep reaching for.

A small, opinionated corner of the internet for things that make family life better — prettier when possible, easier when necessary, and worth the money either way.

The autism lens

High support needs. Whole person.

Profound autism changes the logistics of family life. It does not erase adolescence, taste, preference, humor, dignity or joy. That is why our autism-related coverage is practical and age-respectful rather than pity-driven.

The practical details

Questions to ask and notes to borrow. Open whatever you need.

Ask for access

A clear request can be short. Explain what gets in the way, say what would help, and ask for a reply in writing.

A note you can borrow

Hi, we're planning to visit [place] on [date]. A family member has a disability, and [barrier] makes it difficult to take part. Would it be possible to [specific adjustment]? Please let us know what you can arrange and who to ask for when we arrive. If that won't work, is there another option? A written reply would help us plan. Thank you!

Be specific

  • Could we wait somewhere quieter until it's our turn?
  • Could you send a few photos or tell us what happens during the visit?
  • Can our support person stay with us?
  • Could we have the instructions in writing too?

You can begin with the access need. Your family's entire history needn't go into the first email.

US guidance: businesses open to the public and effective communication. Duties and exceptions depend on the setting. This is a starting point for a request, not individual legal advice.

Hotels and pools

A lovely lobby is a bonus. A working pool and the right beds are rather more important.

  • The room: what are the actual beds? Does the separate sleeping area have a door? “Suite” leaves a surprising amount unanswered.
  • The pool: is it open on your dates? And the hot tub? Ask about hours, age rules, and water temperature if it matters to you.
  • The timing: can you swim before check-in or after checkout?
  • The food: what exactly is in the kitchenette? A fridge and microwave won't do the same job as a stove.
  • The noise: ask about events, room location, and somewhere to take a quiet break.
  • The bill: get the total with taxes, parking, fees, and deposits. Read the cancellation terms before paying.
Hi, we're looking at a stay on [dates]. Could you confirm the beds and room layout, what's in the kitchenette, and whether both the indoor pool and hot tub will be open? We'd also like their hours and age rules, and whether we can use them before check-in or after checkout. Please include the total with mandatory fees, any deposit, and the cancellation terms. We also need [access adjustment]. Thanks so much!

Ask the property about your actual dates. An old pool photograph can only tell you so much.

Support communication

Please speak to the person. Give them time to answer. Those two things are a very good place to start.

AAC means augmentative and alternative communication. Pictures, gestures, writing, and devices can all be part of it.

  • Keep the person's communication method within reach. Ask before moving or touching a device.
  • Leave time for a response before asking the question again.
  • Offer choices the person can use, including “no,” “stop,” and “break.”
  • Use language that respects their age. Speech alone doesn't tell you what someone understands.

A note for a host

Please speak directly to our family member and give them time to respond. They communicate using [method]. Please keep it available and ask before touching their device. It helps to [individual preference]. They may also need time to pause. Thank you for making room for this.

Further reading: CommunicationFIRST, its guidance written by AAC users, and ASAN on autism.

Understand ableism

Ableism can show up in an ordinary exchange: talking over someone, dismissing an access request, or assuming a person won't enjoy an activity because they need help with it.

Some autistic people need substantial support throughout their lives. They still have preferences, privacy, and every reason to be included.

What that means here

Include the person in the conversation.
Speak to them, with the communication support they use.
Allow a different sort of visit.
A break, a shorter stay, or watching before joining in can make the day work.
Keep support available.
Comfort and communication shouldn't have to be earned.
Let private moments stay private.
A hard day doesn't need to become a public story.

We write as a family. Autistic people speak for themselves, including through AAC, and their own words matter.

ASAN on autism · CommunicationFIRST's wording guide

If an access request is refused

Ask for the reason in writing. It gives you something specific to respond to.

  1. Restate the barrier and the adjustment you asked for.
  2. Ask which policy applies, and whether another arrangement would work.
  3. Find out who can review the decision.
  4. Keep the dates and messages. Write down what happened while it's fresh.
Thank you for getting back to us. The difficulty is [barrier], and we asked for [adjustment]. Could you explain why that isn't possible, share the relevant policy, and let us know whether an alternative would work? Who could review the request? We'd appreciate a written reply.

For US rights guidance: businesses, government programs, and Massachusetts communication access. The rules depend on the setting; a refusal alone doesn't establish a legal violation.

Make the day simpler

One good thing is plenty

Pick the part of the day everyone is looking forward to. Leave space around it, and know what the shorter version looks like.

Before the shoes go on

  • Confirm the hours, parking, bathrooms, and food.
  • Show what comes first, next, and afterward in a familiar way. Actual photos can help.
  • Know where you can take a break, and how to get back to the car.

For the bag

A communication device and charger, familiar food and drink, a comfort item, spare clothes if needed, and the supplies in the person's usual support plan.

There is no prize for staying longer than everyone wants to.

Choices, routines & things to do

Today's choices, please

A choice board needs to match what's actually available. For an ice-cream stop, that means today's flavors at the right shop.

  • Offer a few clear choices, with words and useful pictures.
  • Keep flavor, cone or cup, and size as separate decisions.
  • A strawberry picture says more than a pink square.
  • Include “something else,” “no,” and “finished.” Allow time to choose.

A short plan for a new place

Show the place, who will be there, what happens, where a break can happen, and going home. Use real photos when you can. Leave room for things to change.

Activities for teens

Start with what interests them: swimming, animals, films, a walk, or making something to eat. The amount of help someone needs doesn't make their interests younger.

  • Ask about group size, noise, pace, and whether a support person can join.
  • Check the changing facilities and where to take a break.
  • See whether a short introduction or trial visit is possible.
  • Find a part of the activity they can choose and take part in, with the help they need.

A note to hand over

The plan today is [activity and time]. Communication: [method and response time]. What helps: [specific support]. A break: [place or cue]. If plans change: [how to explain or contact us]. Please follow the existing support and emergency plans.

Share private care details securely with the people who need them. More on communication support.

Clothes that feel right

A beautiful sweater that nobody wants to wear is still a sweater sitting in a drawer.

Start with the clothes that feel right. Then look at the details: the collar, the seams, the waistband, and whether the fastenings are manageable.

  • Use measurements. One brand's medium isn't every brand's medium.
  • Check washing and drying before buying.
  • Build around a comfortable shape or color that already gets worn.
  • Read the return policy, especially when ordering an unfamiliar fabric.

Classic can be quite simple. Comfortable clothes, a useful layer, and no argument with the waistband.

Clothes we've bought

One family. Not the whole spectrum.

We write about what we wear, where we go, what earns space in the house, and the practical side of life with profound autism. The point is not perfection. It is knowing enough to make a better choice before spending the money or loading the car.

Our family experience includes profound autism and very high support needs. That gives us one specific lens - not ownership of autism, neurodiversity, or anybody else's story.

What that means here

We use profound autism descriptively for our family's support-needs reality. We know the term is contested. Some families and researchers find it useful; some autistic self-advocates strongly oppose it. We do not use it as a hierarchy of human worth.

When we write generally, we usually use identity-first language such as autistic person, while respecting individual preferences when they are known. We welcome autistic and neurodivergent readers across support levels.

Some details stay within our family. Useful does not require invasive.

Read our language & representation standard
Notes from New England
A swim and a good lunch

Give us somewhere to swim and something good to eat, and there is the beginning of a day out.

It is tempting to add three more stops because they're nearby. They will still be there another day. Leave time to enjoy the thing you came for.

Before leaving, check the opening hours, food, bathrooms, and somewhere to take a break. Keep a shorter version of the day in mind too.

The questions to ask first
The unglamorous questions

Can it go in the washing machine? Does the lid come apart for cleaning? Will it need a subscription after we've bought it?

Those questions aren't much use in a beautiful photograph. They're rather useful once the parcel arrives.

The same goes for meal kits. “Quick” can mean very different things once you count the chopping, extra ingredients, and washing up.

What's in our shopping list
A shorter visit

There is a great deal of advice about making the most of a visit. Sometimes that means leaving while everyone is still having a good time.

Watching for a while, doing one part, taking a break, or choosing to go home are all things a plan can allow for. Ask about re-entry before you need it.

The person taking part should have a say in what comes next.

About the links, reviews & language

We'll tell you what we've tried, what we've only researched, and what didn't work for us.

A gift, a hosted stay, paid work, or a commission link will be identified with the post. A gift doesn't buy a good review.

Representation matters too. We do not use pity, "inspiration" framing, cure language, or infantilizing content to make disability easier to market. Here is the language standard we hold ourselves to.

The planning notes here are family guidance, not individual medical or legal advice. For a correction or question, send us a message. We'd like to get it right.

Resource links checked October 2, 2026.

For brands + partners

We are especially open to ongoing family wardrobe partnerships, premium gifting, travel, home, useful tech, and age-respectful sensory/adaptive products.

The strongest work here feels editorial first: a product living in real family life, with enough time and context to say why it is worth having.

An AUsome Life · New England · @anausomelife

Your text is ready

Select and copy the text below.